Related Sites

Bioethics

• NIH Bioethic Resources on the Web
• U.S. Department of Health and Human Services - Office for Human REsearch Protections (OHRP)

Biotech Industry

• Biotechnology Industry Organization
• Pharmaceutical Research and Manufacturers of America (PhRMA)

Clinical Trial Information

• CenterWatch - Clinical trials listing service
• ClinicalTrials.gov - Information on federally and privately supported clinical research
• Current Controlled Trials, Ltd - Open access international database and register of randomized controlled trials in all areas of healthcare
• NIH Exploratory Trials in Parkinson's Disease - NET-PD
• NIH Clinical Studies Center
• Parkinson Study Group - Non-profit, cooperative group of Parkinson's disease experts from medical centers in the United States and Canada.  Conduct a number of clinical trials
• PDTrials.org

• FDA - Food and Drug Administration
• Federal Register - Official daily publication for rules, proposed rules, and notices for Federal agencies and organizations

United States Congress

• CapitalHearing.org
• Congress.org - Contact members of the U.S. Congress
  U.S. Congressional Email Directory
  THOMAS- Legislative information on the Internet. Links to all committees and members of Congress trace legislation

  Professional Organizations

  American Academy of Neurology
  American Neurological AssociationFoundation
  American Society for ExperimentalNeuroTherapeutics
  PDTrials.org- Other clinical trial resources

  Informed Consent

  Human Subject Protection : Know Your Rights
• Office for Human Research Protections (OHRP)

Supportive Services

• Assisted Living Directory (see "home" for full directory index)

   

Medical Research Databases

• BioMed Central - An independent publishing house committed to providing independent free access to peer reviewed biomedical research
• MedlinePlus - A service of the U.S. National Library of Medicine and the National Institutes of Health (NIH)
• MedlinePlus Clinical Trials Health Information
• National Library of Medical Gateway
• PD Online Research, powered by The Michael J. Fox Foundation
• Pub Med- Citations to biomedical articles and links to many free full-text

Medicare Coverage

• Centers for Medicare and Medicaid Services (CMS) Medicare and Clinical Trials
• Medicare Learning Network (Medlearn) Medicare and Clinical Trials

Parkinson's Research Centers and Institutes

• National Human Genome Research Institute
• National Institutes of Health (NIH) - Parkinson's Disease
• Muhammed Ali Parkinson Research Center
• National Institute on Aging
• National Institute of Environmental Health Sciences
• National Institutes of Health (NIH) - Parkinson's Disease
• National Institute of Mental Health
• National Center for Complementary and Alternative Medicine
• National Institute of Neurological Disorders and Stroke
• NIH Roadmap - Accelerating Medical Discovery to Improve Health
• Parkinson's InstituteInstitute

Parkinson's Organizations

• American Parkinson Disease Association (APDA)
• Cure Parkinson's Trust  (UK) 
• Parkinson Society Canada (Canada)
• European Parkinson's Disease Association (EPDA)
• Parkinson's Disease Society (PDS) in the United Kingdom (Europe)
• Muhammed Ali Parkinson Research Center(with link to its Parkinson's Disease Registry)
• Michael J. Fox Foundation for Parkinson's Research
• National Parkinson Foundation
• Northeast Parkinson's and Caregivers, Inc.
• Northwest Parkinson's Foundation
• Parkinson's Action Network
• Parkinson Alliance
• Parkinson's Association of Lousiana
• Parkinson's Disease Foundation
• Parkinson Research Foundation, Inc.
• Southeast Parkinson Disease Association
• YOPA - Young Onset Parkinson's Association

Health Advocacy and Education

• Alliance for a Stronger FDA
• Alliance for Aging Research
• Exeter Parkinson's Disease Specific Interest Group (Europe)
• Families USA
• FASEB- Office of Public Affairs (Federation of American Societies for Experimental Biology)
• Faster Cures
• GoozNews Blog
• Grassroots Connection - an independent advocacy site for neurological disorders
• HoA - Heads of Agencies, Mutual Recognition Facilitation Group (MRFG)
• Kaiser Network.org - Health Policy As It Happens - Daily Report
• Patient UK(Europe)
• PDBlogger - an independent English & Spanish Parkinson's information site
• SPRING - Special Parkinson's Research Interest Groups of the Parkinson's Disease Society, United Kingdom
• Institute of Medicine - Forum on Drug Discovery, Development and Translation
• Institute of Medicine - Roundtable on evidence Based Medicine