Related Sites

Bioethics

• NIH Bioethic Resources on the Web
• U.S. Department of Health and Human Services . Office for Human REsearch Protections (OHRP)

Biotech Industry

• American Society for Experimental NeuroTherapeutics (ASENT)
• Biotechnology Industry Organization
• Pharmaceutical Research and Manufacturers of America (PhRMA)

Clinical Trial Information

• Acurian - Listing of trials currently enrolling patients and news
• CenterWatch - Clinical trials listing service
• ClinicalTrials.gov - Information on federally and privately supported clinical research
• Current Controlled Trials, Ltd - Open access international database and register of randomized controlled trials in all areas of healthcare
• EUDRACT- European Clinical Trials Database-database of all clinical trials commencing in the EC from 1 May 2004.(Europe)
• NIH Exploratory Trials in Parkinson's Disease - NET-PD
• NIH Clinical Studies Center
• Parkinson Study Group- Non-profit, cooperative group of Parkinson's disease experts from medical centers in the United States and Canada.  Conduct a number of clinical trials
• PDTrials.org
• Veritas Medicine - Search for clinical trials.  Requires free registration

Government

• EMEAThe European Medicines Agency(Europe)
• FDA - Food and Drug Administration
• FDA - Center for Drug Evaluation and Research (CDER)
• Department of Health & Human Services
• Federal Register - Official daily publication for rules, proposed rules, and notices for Federal agencies and organizations

United States Congress

• CapitalHearing.org
• Congress.org- Contact members of Congress
• U.S. Congressional Email Directory
• THOMAS - Legislative information on the Internet. Links to all committees and members of Congress; Trace legislation

Professional Organizations

• American Academy of Neurology
• American Academy of Neurology Foundation
• The Dana Alliance for Brain Initiatives

Living with Parkinson's

• pdplan4life, created to motivate and inspire people with Parkinson’s
• The PDCreativity Project

Informed Consent

• Human Subject Protection : Know Your Rights (FDA)
• HHS – Office for Human Research Protections FAQ

Medical Research Databases

• BioMed Central - An independent publishing house committed to providing independent free access to peer reviewed biomedical research
• MedlinePlus - A service of the U.S. National Library of Medicine and the National Institutes of Health (NIH)
• MedlinePlus Clinical Trials Health Information
• National Library of Medical Gateway
• Pub Med- Citations to biomedical articles and links to many free full-text

• Alliance for a Stronger FDA
• Alliance for Aging Research
• Exeter Parkinson's Disease Specific Interest Group (Europe)
• Families USA
• FASEB- Office of Public Affairs (Federation of American Societies for Experimental Biology)
• Faster Cures
• GoozNews Blog
• Grassroots Connection - an independent advocacy site for neurological disorders
• HoA - Heads of Agencies, Mutual Recognition Facilitation Group (MRFG)
• Kaiser Network.org - Health Policy As It Happens - Daily Report
• Patient UK(Europe)
• PDBlogger - an independent English & Spanish Parkinson's information site
• SPRING - Special Parkinson's Research Interest Groups of the Parkinson's Disease Society, United Kingdom
• Institute of Medicine - Forum on Drug Discovery, Development and Translation
• Institute of Medicine - Roundtable on evidence Based Medicine