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What is the Pipeline Project?
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The Parkinson Pipeline Project:
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Promotes policies that accelerate the evaluation, approval
of safe, effective, and timely new treatments for PD by
providing the unique patient perspectives to industry
sponsors and investors, clinical scientists, and government
regulatory agencies.
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Maintains a comprehensive database of information that may
affect ultimate approval and marketing of new therapies
including research findings from laboratory studies, animal
testing, and human clinical trials, as well as relevant
financial and strategic business information about sponsors.
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Tracks the progress of new therapies and diagnostics as
they move through sponsors' pipelines, and informs the PD
community and the public about hopeful steps toward better
treatments and cures.
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Recruits, trains, provides peer supervision, and
up-to-date information on the views of grass roots opinion
leaders and clinical trial participants for a cadre of well
informed PD patient consultants to represent authentic
patient interests in the regulatory processes of the FDA in
cooperation with the FDA's Office of Special Health Issues.
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Increases medical provider and patient awareness of and
participation in clinical trials through outreach,
education, and peer counseling.
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Advocates for the rights of clinical trial participants in
relation to sponsors as well as researchers and offers
participants the confidence of peer support to address
grievances with researchers or sponsors.
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About Our Team
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The Pipeline Project is comprised of people with Parkinson’s disease
who volunteer their time, talent, and expertise; and share their unique
patient perspective to help bring better therapies, more quickly, to people who need them.
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Coordinating Staff
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Perry Cohen, Ph.D.
Director
District of Columbia, USA
Diagnosed with PD May, 1996
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Tony Jedlinski, B.S. Database Developer Illinois, USA Carepartner |
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Ken Cater Research
Partner, University of Alabama Medical Center
Alabama, USA |
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Peggy Willocks, M.Ed.
Volunteer Coordinator
volunteer_services@pdpipeline.org
Tennessee, USA Diagnosed with PD
1994 |
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Wilson DeCamp
FDA Patient Consultant for PD
Virginia, USA
Diagnosed with PD January, 2005
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Paula Wittekind, M. Ed. Advocacy Coordinator
advocacy@pdpipeline.org Florida, USA Diagnosed with PD 1992 |
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Linda Herman, M.L.S. Therapies Coordinator
therapy_database@pdpipelne.org
New York State, USA Diagnosed with PD December, 1995
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Carolyn Stephenson Web
Administration
comments_suggestions@pdpipeline.org Pennsylvania, USA
Diagnosed with PD October, 1994 |
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Pipeline Team |
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Duncan Blair, Alabama |
Virginia Schwinge, New Jersey |
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Tom Isaacs, England, United Kingdom |
Ann
Wasson, California |
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Rees Jenkins, North Carolina |
Greg Wasson,
California |
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Patricia Peterson, Minnesota |
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